What services does your organization provide?
Alpha-1 Canada offers a number of programs and services for patients, their families and caregivers and the medical community.
Hot Line (1-888-669-4583)
Support groups across Canada
Patient Education Days
Facilitation of one-on-one peer-to-peer support
Print materials for patients, caregivers and family members
Print materials for physicians and allied healthcare professionals
Promotion of wellness and self-management in healthcare programs and services including smoking cessation, nutrition, exercise and other lifestyle changes
Promotion of and information on testing, early detection and treatment of alpha-1 antitrypsin deficiency
Advocacy for equitable and affordable access through provincial government reimbursement for alpha-1 antitrypsin augmentation therapy
Advocacy for federal government policies addressing orphan drugs, rare diseases, access to treatment, quality healthcare and genetic non-discrimination
Liaison with and participate in other patient and healthcare organizations, like the Canadian Alpha-1 Registry, Canadian Medical Association, Canadian Thoracic Society, American Alpha-1 groups, Canadian Organization for Rare Disorders, Lung Associations, Ontario Respiratory Care Society, COPD Canada and the Canadian Network for Respiratory Care
Provide a range of collaborative services to healthcare professionals including consultative participation in policy forums and referrals for patients to researchers for clinical trial recruitment.
Investigate, create and implement on-going methods for organizational growth, data collection and healthcare management. Our goal for this event
to help raise awareness and funds for liver and lung transplants
to help raise awareness and funds for our kid's program, "A-1 Kids"
to raise funds to meet our community's healthcare needs